About Me

      Welcome!!, My name is Lovee' (Pronounced Luh-vey). My father, Richard O. Johnson, Sr., who was very involved with the National Hemophilia Foundation and worked for The Hemophilia Association of New Jersey, told me he took a French class in college and that is how he came up with my name rhyming it with Renee'. He defined it as,"Love of the world".

      I am a 39 year-old wife and stay-at-home mother of 4 children (ages 16, 12 and 4 year old twins).  I have given myself the title, "Mommy CFO".  In my role as Mommy CFO, it is my job to keep my family on budget so everyone can stay happy, healthy and housed!  Please don’t refer to me as a Housewife though.  I make my husband wash his own clothes, so I can stay in total denial.

Blue Ridge Mountain, GA Family Vacation 2014

     Both of my sons have Severe Hemophilia A factor VIII deficiency, so we have to always be prepared for additional medical bills related to their medicine or unexpected hospitalizations.  Having two sons with a chronic disease can be stressful and it is a lot to keep on top of....did I mention my oldest daughter has asthma...yup a lot to keep on top of!  We are originally from New Jersey, but have migrated our family to South Carolina, in the suburbs of Charlotte, NC.

      I started my "Prophyholic" blog in 2011, after I had my second son.  I was having so many random thoughts about being a Hemophilia Mom and really no one to share them with.  (My Husband was tired of hearing me talk and I wanted him to think I had this all under control!)  With my oldest son I had my Father to help me through the rough years and answer all my questions, but he passed away in 2009.  When I first started this blog there was not a lot of Hemophilia Mother groups on Facebook, Instagram or Twitter as there are now!  

     I love communicating with all the "Hemo Moms" on social media and still keep this blog for my random thoughts...sometimes having nothing to do with hemophilia but just being a Women, Mother, Friend or Human.
      
     In March 2014, I took a part-time job with BioRx, a specialty pharmacy, as a Patient Advocate where I can extend my knowledge to other "Hemo Moms" making sure they have everything they need to care for their child with a bleeding disorder.

     Also, in 2014 I started being a volunteer blogger for Hemophilia Federation of America (HFA), "Infusing Love", A Mom's View blog, where I contribute a post quarterly with other great "Hemo Moms" sharing our experience!

        I know in the Hemophilia community you can sometimes feel alone, so I hope by reading my blog you know there is someone else dealing with the same issues.  Grammatically, I'm not the best writer ...but this is a judge free zone right?! :)

Thanks,
Lovee'

You can also contact me at prophyholic @ comporium.net, with any questions or private messages! 

Member of

Hemophilia of South Carolina
Hemophilia of North Carolina
Hemophilia Federation of America