This summer though has
been full of new experiences. Marques went to camp for the first time.
He didn't want to go, but under pressure by me he went. Thank goodness,
he loved it and was already talking about going back when I picked him up.
I tell you, he was only gone 6 days, but it felt longer. This was
the first time I was apart from him for so long.... The best part is I
didn't have to worry if he was taking his factor, because he was at a bleeding
disorder camp. Last year I was not ready to let him go, I now regret that
because gaining his independence from me is something we both needed.
Before Marques went to
camp, he did everything to prepare for "Factor Time" but didn't want
to stick himself with the needle. One time, I thought he was going to
hyperventilate as he dangled the needle over the back of his hand scared to
stick himself. I could feel myself getting frustrated because I stick him
3x a week, so, “you know what it's going to feel like!” For the life of
me, I could not understand the hesitation. I stayed as calm as I could and
kept trying to encourage him. Eventually, he stopped hyperventilating, but
still did not have the confidence that he was going be successful in getting a
flush back the first time.
Well fast forward to
now, after Camp Burnt Gin bleeding disorder week, he's a Pro. Somehow, at camp he gained
confidence. I asked him if the Nurse helped him, he said, "No, I
just did it myself". One thing I know about my son, he doesn't like
anyone else to stick him except for me..even when we go get his blood work done
I stick him for the Nurse. So, I guess it was good I was removed from the
situation and he had to depend on himself. He also told me how he was encouraging another Camper to learn how to give himself factor and holding his hand!
Marques first self-infusion after Camp Burnt Gin Bleeding Disorder Week |
I have continued to
remove myself from the room while he does his factor. It's been a month
and I am still impressed how he has taken over his treatments. It’s
amazing how much kids mature and grow over the summer. I guess I need to start calling him a
Prophyholic!
No comments:
Post a Comment
Thanks for your comments or sharing your own stories: